Alex Pearlman: “A Framework for Collectively-Defined Ethics Standards for Independent Researchers and Community Bio Groups”

Alex Pearlman (Journalist and Bioethicist; Research Affiliate, the MIT Media Lab Community Biotechnology Initiative) presents as part of the Ethics Center's 2020-21 series, Models for Equitable Minority Inclusion in Institutional Research.

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About the series: Because citizen science work often works outside of institutional channels, it often faces difficulties when it intersects with institutional structures, often disproportionately hurting minoritized communities and those not traditionally served by academic and institutional research models. In this series, we explore this intersection with an aim of understanding how community participation can be made more equitable and just.